The third pediatric nephrology congress was hold at October 23th- 25th in Tehran/ Rasool Akram hospital .

The third pediatric nephrology congress was hold at October 23th- 25th in Tehran/ Rasool Akram hospital .

The patient day (third day of congress) was hold for Cystinosis patients. Almost 50 Cystinosis patients attended in this seminar with their parents . Dr.Ahmadzadeh had a lecture about cystinosis for patients and their parents. Pulmonary function test has performed for all patients without charge.

There was also a question/answer section for patients with the presence of several Iranian pediatric nephrologists experienced in Cystinosis and Prof Niaudet from France.

Approximately 90 % of the patients was unsatisfied with the availability of Cysteamine eye drop. Cystinosis educational booklet for parents use, has provided by Orphan Europe Company.

Enormous thanks to Orphan Europe Company for financial support and excellent job at the "Cystinosis patient`s day".